Advocacy is a cornerstone of the SHINE Syndrome Foundation's mission. We work tirelessly to raise awareness about SHINE Syndrome and advocate for policies that improve the lives of those affected by this condition. Our advocacy efforts include lobbying for increased research funding, better healthcare access, and educational support for individuals with SHINE Syndrome. We also provide tools and resources to empower families and individuals to become effective advocates within their communities.
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SHINE Syndrome Foundation is a proud part of
Eagle Mountain Chamber of Commerce
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